It's Aloha Friday...

Thank you to all of you who attended last night's ALS 101 Seminar. It was very informative and very promising. For those of you who were not able to attend, we highly recommend going online and seeing what ALS TDI is working in this battle against ALS. Their website is www.als.net.

Our dinner the night before with the team was wonderful. Mike, Nancy, Mary Beth, John, and Sean are all such great people with a lot of passion for what they do. We learned so much from them. Mary Beth, who is an expert in ALS care, gave us a lot of tips and information about Peggy's current care. She gave us a lot of ideas of things we could try. I put her in contact with Dr. Davis last night. He was very excited to talk with someone with experience in advanced ALS care. Mary Beth's website is www.alscare.com.

Peggy had her doc visit yesterday. Dr. Davis is aware of all the issues she is currently dealing with. One of the things that has returned is Peggy's hallucinations. She is having visual hallucinations quite frequently. We're still not sure what the cause is. Again as a reminder, if you notice Peggy having a hallucination or if she mentions it, please log it. Please include if she had just had meds or any other clues as to why they might be occurring.

Tonight we are going to First Friday/Chinese New Year celebration in Chinatown. Indy is very excited! And then tomorrow, we will be bringing "Lost" over so that Peggy can finally watch it!!! The long awaited Season Premiere that we missed last night! Don't tell us ANYTHING if you've already watched it!

This weekend is also Punahou Carnival (that's why it is raining!). If you go, please check out Peggy's Nose Paintings in the art gallery.

We have some type of problem with our electricity. Our HECO bill has been going up and up and up. While it is already high due to the use of the ventilator (a vent can add hundreds of dollars to your monthly bill), this is a bizarre increase over the past few months that may be due to a hot water leak. We have alerted the landlord, who is looking into it. Until we resolve this, can you please help us out by being extra conservative with electricity - turn off the lights when you leave a room, don't leave the hot water running, etc. etc. This will help balance out the increase on our bill until the problem is resolved.

Have a great weekend everyone! Alooooooooha!