Thursday, July 19, 2007

Peg's Legs Update: Peggy's Eyes

Here's the general update I sent out to Peggy's BIG email list...did I ever mention that I have around 400 people on the Peg's Legs Update list?!

Aloha Peg's Legs,

Hope everyone is having a great summer! Peggy has been busy (isn't she always!) with lists and projects. If you remember, she was working on a book with Shelly Mecum, well, we are happy to share that "The Watercolor Cat" will be going to press in just a few days and will be available for Christmas! So exciting. Peggy already has other book ideas in mind.

The Father Damien watercolor mosaic is another project on Peggy's mind. We are starting to recruit volunteers for the next stage of this big undertaking - the assembly of all the little bitty squares on the paper. Peggy is working on her detailed instructions and guidance for her assistants.

Peggy got to talk on the phone yesterday with her Dad and Sara who are having a quiet 90th birthday celebration this weekend. Hooray! Happy Birthday Joe and Sara! And speaking of birthdays...we have a couple more very special birthdays coming up...on August 7th Elroy will be turning 80! And on August 25th Sawyer will be turning 1! Yay for the Chun Boys!

It is important for us to let you all know that it is getting more difficult to read Peggy's eyes. As most of you know, she has only her ocular movement left. She is unable to blink her eyes and therefore they often become very dry and irritated making it difficult to use the spellboard with her on some days. She has not been able to use the ERICA computer for the past year because of her dry eyes.

The muscles in Peggy's eyes seem to be weak on some days. We have good days and we have bad days. As you can tell from above, she can communicate well enough to drive us crazy helping her with all her projects! Ha! We don't want to sound dramatic, but we do want to make sure that you understand that we have been talking with Peggy about what her wishes are once she loses her eye movement. No one knows when this will be - it could be weeks, months, or even longer - however, we feel good that we are planning with Peggy now while she can still communicate.

This is probably the hardest part of the journey for all of us. Thankfully, we are blessed with the amazing Peg's Legs caregivers/support team. Eric, Elroy, and I can't find words strong enough to express how deeply grateful we are for the care and love Peggy gets everyday. And not only do the Peg's Legs nurture and support Peggy each day, they nurture and support US and that's why we are still standing strong at year 5 of this journey.

Thank you to all of you for your continued love and support. Peggy sends her love to each and every one of you.

Me ke aloha,

The Chun Ohana

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