It has been a long weekend and last week felt pretty long too. But now we're here on Monday with fresh new start and some important updates for everyone.
First of all, we had a meeting with Peggy on Saturday afternoon. It was Eric, myself, Dr. Davis, Cory, Cathy, Elroy, and Hanna who was our amazing speller for the meeting. As you know, it has been getting more and more difficult to read Peggy's eyes. We have good days and bad days and Dr. Davis is concerned that she is losing her ocular movement. She has definitely lost some range of motion in her ocular movement and so the smart thing to do is to start planning for the time when she can no longer communicate at all.
No one knows when this will be, but we all know that Peggy needs to use this time when she can communicate to express her desires should she get "locked in". I'm not going to go into the details of her decisions in this post - we will be discusssing all of this in detail at Wednesday's Peg's Legs Meeting. For those of you who can't attend, we'll be filling you all in after.
This is obviously a very emotional and intense subject for Peggy and for all of us. And yet, it would be foolish not to plan now when Peggy can still communicate. Peggy is a strong and couragous person, an inspiration to so many, but she is still human and has fears like the rest of us. She needs our compassion and our understanding as she faces her fears.
We all feel such a sense of relief after Saturday's meeting. It was sort of like finally dealing with the "elephant in the room". I think we've all been avoiding talking about the possibility of Peggy's eyes losing strength and what we will do if that happens. We all had the chance to say things that we've been wanting to for a long time and what a relief that is.
So here we are on this bright happy Monday - the first day of the rest of our journey! Please take a moment today to give yourself a hug and really feel our appreciation for each and every one of you. Thank you for all that you do and for your dedication and LOVE! XOXOXO
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1 comment:
WOW
A very important sharing BUT tough to hear for Peggy and also for us. I could sense it was an "elephant" (in the corner)when I worked last week and saw the big change.
I saw a rainbow early this morning and it reminded me that so much is out of our control.
Remember Kimi
"WE ARE FAMILY"
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