Tuesdays are always so BUSY here in Chun Land. Here's the update - brace yourself, this is a long one:
DOCTOR VISIT - Peggy had her Tuesday doc visit however we couldn't get the internet/telemed connection going. Dr. Davis is going to bring a new router here and try to fix things tonight. He'll also check out Peggy's ears when he comes by. Peggy wrote down her issues and so Cathy just told him everything over the phone. Here's what Peggy had written out with Marvel yesterday:
"I'm worried about noise and leaking in trach. Cuff seems to be having difficulty staying secure. It causes pain when this happens. It causes the cannula to press against the side of throat which in turn results in ear and back pain.
The problem of the prescription for PM Gel has not been resolved. Ty is leaving again next week. She was going to research the many manufacturers.
Foot is better and placement of ankles has worked.
Eye function is dependent on amounts of PM Gel and Refresh Gel and blinking received. Eyes getting tired more often.
Congestion that is always there is getting worse. I would like to schedule a podiatrist and Dr. Peroff (ear doc) preferably same day as trach change. I am requesting that Dr. Druger use real pain killers this time (instead of Lidocaine which is a joke).
Can I get the Botox again (for saliva reduction)."
Dr. Davis responded by saying that he will talk to Dr. Kimata regarding the Botox. He will also talk to Dr. Druger about having a chest x-ray done on Friday. Peggy has 3 appointments scheduled for this Friday. We have scheduled a trach change at 11am in the Queen's ER. Then she will be seeing her ear doc at 12:30 in POB 1. Then she will she a podiatrist at 1:30 in POB 2. Marvel will be taking her and we're working on the Bs. Cathy will be meeting them down there.
It is such a shame that Dr. Davis couldn't see Peggy today - Hanna had her looking oh-so-marvelous! Very Mardi Gras. See attached photo.
BATTERY/ELECTRICIAN UPDATE: Al Sim the Electrician came on Friday. He had HECO come and did a lot of complicated stuff. Basically he told us that we need a grounder (?) put in since we don't have of our own and it's critical if HECO's gives out. It wasn't clear if he thought that this was causing a problem with the charger - but at least we'll get this done and we can tell Respiratory that we have done it. He's coming back tomorrow to work on this. More on this later.
BRAIN PAINTING: Peggy had a "Brain Painting Party" on Friday night with the gang from Archinoetics. They came by with their equipment and pizza and hung out with Peggy while she painted with her Brain Waves! She had a great time.
DR.CASSELLA VISIT: Peggy's Dentist Ed Cassella and his wife Rita came by on Saturday. Ed thought Peggy's teeth and gums looked healthy, but her lower second molars (#18 and #31 for those of you who know teeth) have extruded and are not permitting all her teeth forward of them to come into contact with each other. He thinks a soft rubber mouth guard from a sports shop may help her comfort level. He wants to come back and photograph the molars for a seminar he's attendingHe also gave us a new mouth rinse, just like the old prescription one we were getting at Long's but without alcohol in it, because alcohol tends to dry out the mouth. Thanks so much Ed and Rita!!!
NOSE PAINTINGS AT PUNAHOU AND THE NEWS: Peggy sold 2 Nose Paintings at Punahou Carnival! Yay! She sold "Jungle Tumble" and "Early Snowfall". Peggy was on the KHNL at 10pm on Saturday - did anyone see it? I personally didn't see it but Peggy says that she called KHNL yesterday and they said they will put together a DVD for us this week - cool! Peggy's been doing more nose paintings - she painted Sunday with Marvel. Harinani also came by on Sunday and helped Peggy work on her mosaic called "Beginnings" - she is making some changes to it.
BATH AID/CAREGIVER RECRUITING: I am looking to hire someone to come in Monday through Friday 8am to 11am to help with Peggy's bath. The pay is $10/hour. I have had no luck yet and 2 no-show interviewees. Anyone interested or know anyone? Please spread the word.
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